Education and Training
Training Courses - Paediatric Oncology for Cancer Registries
Download Preliminary Programme Overview (Last update: 01/08/2013)
25-29 November 2013, IARC, Lyon, France
The collection of data items with clinical relevance in population-based cancer registries requires well-defined standards and additional resources, in terms of both personnel and expertise. Cancer registry personnel need to understand the purpose, methods, and specifics of collecting each individual item of data. Without such an understanding, the collected data may be subject to bias and inaccuracy, no matter how well they are defined and coded. In the field of childhood cancer, where data are sparse and an error in a single record may change the interpretation of the results for a large population at risk, this emphasis on each data item is especially important.
Paediatric Oncology for Cancer Registries is a unique course, organized by the International Agency for Research on Cancer (IARC) in the framework of the European Network for Cancer Research in Children and Adolescents (ENCCA), a Network of Excellence funded by the European Commission in FP7 (www.encca.eu). This course is jointly funded by the European Union's Seventh Framework Programme (FP7/2007-2013) under the project ENCCA, grant agreement HEALTH-F2-2011-261474.
Aims of the course
The course aims at strengthening knowledge of epidemiology, biology, clinical practice, clinical research, survivorship, and ethical issues of cancer in children and adolescents. Specifically, upon completion of the course, participants will:
- Comprehend epidemiology and ethical issues relevant to cancer in infancy, childhood, and adolescence;
- Understand the basic pathology and classification of cancer in children and adolescents;
- Have a basic understanding of molecular and cellular biology, and the genetic and biochemical basis of these diseases;
- Be able to describe major cancer types occurring in the young and to understand the principles of their diagnosis and management;
- Be aware of relevant end-points, survival statistics, and survivorship issues;
- Understand and be able to use the terminology encountered in medical records and research reports.
The course is designed for the staff of the European Network of Cancer Registries (ENCR) member registries, including research directors, epidemiologists, physicians, pathologists, statisticians, and registrars. A basic knowledge of cancer registration techniques, data collection, classification, and coding is assumed. The course will provide insight into clinical practice and linkage of clinical data with population-based cancer registries.
Topics to be covered in the course include cross-cutting issues in paediatric epidemiology and oncology, as well as an overview of the diagnostic groups typical in childhood and adolescence.
Download Preliminary Programme Overview (Last update: 01/08/2013)
- Pathology and classification of tumours
- Burden of childhood cancer
- Cancer in adolescents
- Use of cancer registry data
- Ethical issues
- Late effects
- European coordination in the field
- Cancer diagnosis
- Cancer treatment and prognosis
- Tumours of the central nervous system
- Renal tumours
- Bone tumours
- Soft tissue sarcomas
- Germ cell tumours
- Rare tumours
The course will run from noon on Monday until noon on Friday and will also include several sessions of group work.
- Jacqueline Clavel, Inserm, Paris, France
- Piotr Czauderna, Medical University of Gdansk, Poland
- François Doz, Institut Curie, Paris, France
- Jacques Grill, Institut Gustave Roussy, Paris, France
- Lars Hjorth, Lund University, Sweden
- Gernot Jundt, University Hospital Basel, Switzerland
- Aurélien Marabelle, Centre Léon Berard, Lyon, France
- Herbie Newell, Newcastle Cancer Centre, United Kingdom
- Kathy Pritchard-Jones, University College London, United Kingdom
- Riccardo Riccardi, Catholic University of Rome, Italy
- Alfred Reiter, Justus Liebig University Giessen, Germany
- Kjeld Schmiegelow, University Hospital Rigshospitalet, Copenhagen, Denmark
- Dominik Schneider, Clinic of Pediatrics, Dortmund, Germany
- Eva Steliarova-Foucher, IARC, Lyon, France
- Mike Stevens, University of Bristol, United Kingdom
- Charles Stiller, University of Oxford, United Kingdom
- Hans Storm, Danish Cancer Society, Copenhagen, Denmark
- Sandra Strauss, University College London Hospitals, London, UK
Equipment and materials
Participants will be provided with course materials.
Participants should bring their own (Wi-Fi enabled) laptop computer.
Application and requirements
- There is no registration fee for participants, but they are expected to cover their own travel and subsistence expenses.
- Selected participants may be sponsored. Negotiations are currently under way with the European Commission Joint Research Centre, which hosts the secretariat of the European Network of Cancer Registries (ENCR). If these negotiations are successful, all potential candidates will be informed of the possibility of applying for funding to attend the course.
- Participants must be fluent in English, the working language of the course.
- Preference will be given to candidates from the target audience with a record of work in childhood cancer or an interest in this field.
- The online application form, which may be completed here, should be submitted before 12 July 2013 and must be accompanied by a supporting letter from the candidateÂ’s supervisor. The supporting letter should be available in electronic form for uploading during completion of the online application form. The selected applicants will be informed by 31 July 2013.
Please note that this is an intensive course with homework assignments. With the exception of Monday and Friday, the daily schedule is from 09:00 to 18:00, and recommended reading prior to the course would be beneficial.
Participants are expected to be present throughout the full duration of the course. Upon completion of the course, each participant will receive a certificate of participation.
Up to 40 participants will be admitted to the course.
Visa and accommodation
The selected applicants will be provided with a list of hotels and residences in Lyon and will be responsible for booking their own accommodation.
Participants will be responsible for obtaining a visa for France, if required. IARC will provide them with an invitation letter to facilitate this process, if required.
For further information, please contact
International Agency for Research on Cancer
150 cours Albert Thomas
69372 Lyon Cedex 08
Tel.: +33 (0) 4 72 73 83 50
Fax: +33 (0) 4 72 73 86 96